This Model Has A Rare Disease, Joins OnlyFans To Pay Hospital Bills

Jakarta – A woman is trying her luck peddling her photo on the OnlyFans page to help her pay her hospital bills. Who would have thought, his choice made him able to get 50 thousand pounds in a year or around Rp 900 million. Rachael Huckle was diagnosed with a rare autoimmune disease and required … Read more

Pulmonary Hypertension is classified as a rare disease, can the sufferer be cured?

KOMPAS.com – Disease pulmonary hypertension may not be widely known by the public, because it is classified as rare disease which are rare cases. What is pulmonary hypertension?? To be known, pulmonary hypertension is pathophysiological abnormalities in the pulmonary blood vessels, which can cause complications of heart and respiratory system disease. According to the Guidelines … Read more

The story of a 22-year-old woman trapped in an 8-year-old boy’s body, having trouble finding a boyfriend

Suara.com – A 22-year-old woman shares what it’s like to have body child 8 years after contracting rare disease childhood. Shauna Rae from the United States developed a rare brain cancer when she was just 6 months old. This woman had to undergo chemotherapy, but her growth was stunted. Launch The Sun, Shauna Rae’s story … Read more

Treatments that can improve the quality of life for people with thalassemia

loading… JAKARTA – Thalassemia It is a hereditary disease that a child gets from one or both parents. The disorder of this disease lies in the absence of the formation of hemoglobin chains in the blood. Pediatric Consultant Hematology Hospital. Kariadi Semarang dr. Bambang Sudarmanto, Sp.A(K), MARS explained, thalassemia is divided into alpha thalassemia and … Read more

People with Thalassemia Should Limit Consumption of Red Meat and Spinach, Here’s Why!

loading… JAKARTA – Thalassemia is a hereditary disease with the main symptoms of pale, enlarged abdomen due to swelling of the spleen and liver, and if not treated properly will change the shape of the facial bones and skin color to black. Thalassemia patients are mostly children. This disease can be recognized since the age … Read more

Need Special Treatment, Here’s How To Treat and Treat Thalassemia!

loading… JAKARTA – Thalassemia disease is a blood disorder that is inherited from one or both parents. According to Consultant Hematology-Oncology Pediatric. dr. Sri Mulatsih, Sp.A(K), MPH, This disorder makes the sufferer experience anemia or lack of blood and must be wary of because it can cause complications such as heart failure, stunted growth and … Read more

Deborah, 44, has a rare disease and asks for a state flight to be treated in the US: “Life without risk”

Affected by a rare disease he asked the web and the state for help. Deborah Iori, 44 years old living in Sangiano in the province of Varese suffer from congenital zinc deficiency mitochondrial disease, other metabolic and metal transport defects, mitochondrial encephalopathy myopia, a rare treatable disease only at Enviromental Health Center of Dallas. Read … Read more

Wouter Beke (CD&V) suffers from Crohn’s disease: what is that …

– © Kris Van Exel – Flemish minister Wouter Beke (CD&V) suffers from Crohn’s disease, a chronic bowel disease, he said for the first time in an interview with this newspaper. Beke therefore maintains a ‘Spartan attitude to life’. But what exactly is Crohn’s disease? And how many people will be affected? Danny De Looze, … Read more

Many Patients, Indonesia Does Not Have Diagnostic Laboratory of Rare Diseases, This Expert Said

INDOZONE.ID – One of the efforts so that children with rare diseases can immediately get treatment to save their lives is through early diagnosis. However, unfortunately Indonesia does not yet have a single diagnostic laboratory specifically for this disease. This was conveyed by the Head of the Center for Rare Diseases, RSUPN, dr. Cipto Mangunkusumo, … Read more