Jakarta – Bohring-Opitz Syndrome Day or Bohring-Opitz Syndrome Day celebrated every year on 6 April. This anniversary is celebrated internationally and recognized throughout the world to raise awareness about this syndrome. Quoted from National Today, the purpose of this day’s warning is to disseminate information and provide assistance to parents, caregivers and every individual affected … Read more
Drug Shows Promise in Slowing Progression of Rare Genetic Disease Drug Shows Promise in Slowing Progression of Rare Genetic Disease Wednesday, April 3, 2024 A drug previously used in the treatment of certain bone diseases has shown promise in slowing the progression of a rare, painful genetic condition that causes excessive calcium buildup in the … Read more
Jakarta – Adam probably never imagined being born without genitals. However, being born without a penis is not impossible. Some medical records show rare cases of men being born without vital organs. This is also felt by Andrew Wardle. The man from the United States was born with a rare health condition called bladder exstrophy, … Read more
A 29-year-old woman in Shanghai was diagnosed with cancer. (Picture/reproduced from Weibo) Improper living habits will affect your health. A 29-year-old woman surnamed Cao in Shanghai, China, recently sought medical treatment for stomach discomfort. She thought it was indigestion, but she was surprised to find out she had a rare cancer. Since there are no … Read more
Jakarta – Long ago, pirates, explorers and sailors in the United States (US) were stricken with a mysterious disease that caused them to suffer slow and painful deaths. Now, the disease is making a comeback, in the most unexpected places. Scabies, the name of the disease, is caused by a deficiency of vitamin C, which … Read more
Xinhua News Agency, Beijing, December 13 Topic: 126 new drugs are included in the medical insurance covering rare diseases and other fields – scanning of the new version of the National Medical Insurance Drug Catalog Xinhua News Agency’s “Xinhua Viewpoint” reporters Peng Yunjia, Wen Jinghua, and Lin Miaomiao After 168 rounds of negotiations and bidding … Read more
Xinhua News Agency, Beijing, December 13 Topic: 126 new drugs are included in the medical insurance covering rare diseases and other fields – scanning of the new version of the National Medical Insurance Drug Catalog Xinhua News Agency’s “Xinhua Viewpoint” reporters Peng Yunjia, Wen Jinghua, and Lin Miaomiao After 168 rounds of negotiations and bidding … Read more
To save her life, a drug is needed which unfortunately is unavailable in Italy. This is the story of a 17 year old girl suffering from one cardiac syndrome very serious, which caused ventricular arrhythmias, syncope, fainting and, during the worst crises, even death. Dr. Oleksandra Kotsiborska, doctor but above all mother of the girl, … Read more
Money Today Reporter Chae Tae-byeong | 2023.10.31 21:33 / Photo = Channel A entertainment show ‘Oh Eun-young’s Golden Counseling Center’ Comedian Kim Mi-ryeo said about her second son’s rare disease, “I felt like it was my fault.” On the 31st, Kim Mi-ryeo and her husband Jeong Seong-yoon appeared on Channel A’s entertainment show ‘Oh Eun-young’s … Read more
Zeng Tian (Zeng Tingyu), an actress who was a cast member of the variety show “Are There Any College Students?”, suffered from myasthenia gravis. (Picture/reproduced from Facebook/Zeng Tian’s fan page) Zeng Tian (Zeng Tingyu), an actress who was a cast member of the variety show “Are College Students Dead”, was active in the temple fair … Read more