Treatments that can improve the quality of life for people with thalassemia
loading… JAKARTA – Thalassemia It is a hereditary disease that a child gets from one or both parents. The disorder of this disease lies in the absence of the formation of hemoglobin chains in the blood. Pediatric Consultant Hematology Hospital. Kariadi Semarang dr. Bambang Sudarmanto, Sp.A(K), MARS explained, thalassemia is divided into alpha thalassemia and […]
People with Thalassemia Should Limit Consumption of Red Meat and Spinach, Here’s Why!
loading… JAKARTA – Thalassemia is a hereditary disease with the main symptoms of pale, enlarged abdomen due to swelling of the spleen and liver, and if not treated properly will change the shape of the facial bones and skin color to black. Thalassemia patients are mostly children. This disease can be recognized since the age […]
Need Special Treatment, Here’s How To Treat and Treat Thalassemia!
loading… JAKARTA – Thalassemia disease is a blood disorder that is inherited from one or both parents. According to Consultant Hematology-Oncology Pediatric. dr. Sri Mulatsih, Sp.A(K), MPH, This disorder makes the sufferer experience anemia or lack of blood and must be wary of because it can cause complications such as heart failure, stunted growth and […]
British Woman Sick 16 Months of Rare Disease
Jakarta, CNN Indonesia – A rare medical condition that a woman experiences sick for 16 months. Only emergency surgery saved his life. Rebecca Bostock started experiencing abdominal swelling in January 2020 which made it difficult for her to eat. “My stomach was so swollen I couldn’t breathe. I was sick, I couldn’t take any medication,” […]
Deborah, 44, has a rare disease and asks for a state flight to be treated in the US: “Life without risk”
Affected by a rare disease he asked the web and the state for help. Deborah Iori, 44 years old living in Sangiano in the province of Varese suffer from congenital zinc deficiency mitochondrial disease, other metabolic and metal transport defects, mitochondrial encephalopathy myopia, a rare treatable disease only at Enviromental Health Center of Dallas. Read […]
Family Stories with Fingerprintless Genetic Heritage from India page all
NEW DELHI, KOMPAS.com – Apu Sarker showed his palm.Everything seemed normal at first, but on closer inspection it had a smooth surface on the tips of its fingers. Apu, who is 22 years old, lives with his family in a village in the northern district of Rajshahi. He is currently working as a medical assistant. […]
Wouter Beke (CD&V) suffers from Crohn’s disease: what is that …
© Kris Van Exel Flemish minister Wouter Beke (CD&V) suffers from Crohn’s disease, a chronic bowel disease, he said for the first time in an interview with this newspaper. Beke therefore maintains a ‘Spartan attitude to life’. But what exactly is Crohn’s disease? And how many people will be affected? Danny De Looze, professor and […]
Many Patients, Indonesia Does Not Have Diagnostic Laboratory of Rare Diseases, This Expert Said
INDOZONE.ID – One of the efforts so that children with rare diseases can immediately get treatment to save their lives is through early diagnosis. However, unfortunately Indonesia does not yet have a single diagnostic laboratory specifically for this disease. This was conveyed by the Head of the Center for Rare Diseases, RSUPN, dr. Cipto Mangunkusumo, […]