Photo: facebook.com/save.children.sma
Infant with SMA from Odessa received the most expensive injection in the world
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A shot of Zolgensma costs $ 2 million, but it completely cures spinal muscular atrophy.
Dmitry Svichinsky from Odessa received the world’s most expensive Zolgensma injection for spinal muscular atrophy. About it informs social movement Children, we will make it on Friday, July 16th.
“The moment that tens of thousands of caring Ukrainians around the world have been waiting for and aspiring to has taken place – Dima Svichinsky received the coveted injection of Zolgensma! incredible result! “, – said in the message.
At the moment, Dima and his parents are at the children’s hospital in San Antonio (USA), where he received an injection today, and then will undergo a two-month rehabilitation course. The course costs $ 250 thousand less than if the drug was administered in Ukraine.
At the end of May, Dmitry’s parents, thanks to volunteers, raised $ 2 million for an SMA injection. Previously, it was believed that the disease is incurable, but in recent years, three drugs have appeared in the world that can stop the disease.
Zolgensma is the first gene therapy drug introduced in 2019 by the Swiss pharmaceutical company Novartis. It is suitable for patients with all forms and types of SMA who are under 2 years of age at the time of dosing. The drug is administered intravenously, the process takes about an hour.
It only needs to be administered once, while the other two drugs need to be taken for life.
Recall that in February in the Kherson region the baby was given an injection worth $ 2.3 million… Eight-month-old Maria Sakhno from the city of Tavriysk received medication for SMA.
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