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CIDP, chronic inflammatory demyelinating polyneuropathy, is a disease with many faces. You can find out here why she is so difficult to recognize, why early diagnosis is so important and how CIPD patients live with her disease.
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Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare autoimmune disease in which the insulating layer of the nerve fibers is attacked, inflamed and gradually broken down. The result: a disturbance in the signal transmission in the nerves. This leads to impairments in movement and sensory perception. It is caused by the patient’s own immune system, which can no longer reliably differentiate between “own” and “foreign” in the case of an autoimmune disease – and wrongly also destroys the body’s own cells.
A disease with many faces
CIDP is a complex disease. The symptoms can vary significantly. they develop either slowly and over a long period of time or in batches of varying intensity. Therefore, CIDP is often diagnosed late or not correctly at all.
A distinction is made between motor and sensory symptoms, depending on whether motor (responsible for movement) or sensory (responsible for perception) nerve fibers are affected.
To the motor symptoms reduced strength and agility or gait insecurity count. The CIDP often shows in the beginning in a bilateral weakness in the legs or arms. What starts with a slight muscle weakness can lead to symptoms of paralysis. Sensory symptoms appear e.g. in the form of sensory disturbances on the hands and feet or changed perception of touch.
Early diagnosis is crucial
If polyneuropathy is suspected, the patient should be referred to a neurologist for an early diagnosis. In the course of further investigations, e.g. B. other neurological autoimmune diseases such as Guillain-Barré syndrome (acute form of CIDP) excluded. Diabetes and alcohol abuse can also lead to chronic polyneuropathy and are therefore often wrongly assumed to be the cause. Appropriate treatment can be initiated once a CIDP has been diagnosed.
My life with CIDP
In their very personal stories on the service portal, they tell how patients deal with their illness and lead a self-determined life despite CIDP www.leben-mit-cidp.de. Here, patients, relatives and other interested parties can find further useful information on illness, diagnosis, treatment options and other services.
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