Coronavirus.- Incliva starts a sedation projection in critically ill patients to increase their survival – INCLIVA
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VALÈNCIA, Apr 24 (EUROPA PRESS) –
A study of researchers from the Incliva health research institute, the Hospital Clinico de València and the Universitat de València (UV) warns of the “profound ignorance” of rare respiratory diseases among pediatric professionals and medical students.
Recently published in the ‘Journal of Clinical Medicine’, where several of the country’s leading specialists in Alpha-1 Antitrypsin Deficit (DAAT) have a prominent role, the project proposes to include relevant material in the medical curriculum to avoid that this ignorance is translated into underdiagnosis.
The results of the research, carried out between 2015 and 2017, derive from the doctoral thesis of Mª Ángeles Requena-Fernández, directed by doctors Amparo Escribano and Francisco Dasí, as well as from the research and dissemination group on rare respiratory diseases of Incliva and professors of the UV.
The thesis started from the fact that DAAT and primary ciliary dyskinesia (DCP) take an average of five to ten years to diagnose from the first symptoms begin, which has negative effects on the prognosis and quality of life of the patient, explains the institute in a statement.
The lack of knowledge among health professionals involved in the treatment of these patients has been suggested as a “possible cause”, so the objective was to assess the knowledge of these diseases among pediatricians and medical students to determine what areas of knowledge they are more deficient.
To achieve this, they surveyed a total of 1,241 Valencian pediatricians, 275 specialists in pediatric pulmonology from the rest of Spain, 400 in other areas of child medicine and 271 final year medical students at the University. They answered questions about the knowledge of the pathophysiology, diagnosis, and treatment of both DAAT and DCP.
Among the results, it is striking that more than 60% of students and 45% of primary care pediatricians admit to having a very basic knowledge of these diseases. About three-quarters say they have enough information, especially pulmonology specialists.
According to the researchers, the responses about specific aspects of these rare respiratory diseases were “quite satisfactory” among pediatric specialists, although not so much among medical students. The knowledge of the DAAT treatment is “very improvable”, with percentages of success in the questions asked, ranging from 25% of pediatricians to 15% of students.
In conclusion, the study warns that it is necessary to increase training in rare respiratory diseases among all the doctors responsible for diagnosing them. Early detection, the authors recall, is essential for those affected, since it allows the configuration of preventive measures and appropriate early treatment. Therefore, they claim to “close this knowledge gap” from the medical curriculum itself.
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