Last week I received a message from my colleague vv Middelstum PR committee member Jeroen Boomsma. Whether I could pay some attention to the Walking for Lana campaign, that is, to the beautiful campaign for his niece. I had to dig into my memory to see what happened again. Because two years ago, grandfather Theo had already told something about this during his retiree interview, about the health of his granddaughter.
And of course I know both of Lana’s parents. Dad Sander used to be the lightning-fast right forward of the team of which I was youth leader at the time. And tired Laura was already in the spotlight in the quickies section.
But now Lana is central to this piece. The ever cheerful and brave girl who was born apparently healthy eight years ago. Last week I was able to draw attention via the website to Dorian Ottens Segers, who was born with a gene mutation. Man, good health is such a great asset. And a sick child can turn your life upside down. Sander and Laura found this out when their daughter suddenly had an epileptic seizure. She stayed there for two anxious hours. And then of course the world stands still and turned upside down for a moment.
The final diagnosis was multifocal epilepsy. Not fun of course, but she bravely gets through it. Yet both parents would like to take action to raise money for further research into this form of epilepsy. Below you can read Laura’s motivation:
‘On April 18, 2018, our lives suddenly changed. From one moment to the next, Lana had an epileptic seizure, a status epilepticus. She couldn’t figure it out on her own and went to the hospital with all the bells and whistles. She was in it for 2.5 hours. As parents you don’t know what will happen to you. After a stay in the ICU and nursing ward, we were sent home with emergency medication and examinations followed. An exciting time began.
We eventually ended up at SEIN and were soon diagnosed with multifocal epilepsy. The 24-hour EEG that Lana had several times showed that the epileptic activity was present for 24 hours. On top of that, she suffers a lot from abscesses, which are attacks that last a few seconds. All this makes Lana very tired. Due to her epileptic activity and seizures, she has developed a developmental delay and was no longer able to keep up with regular education. Lana has been going to special education for a year now and she can grow and develop at her own pace, but more importantly: gain experiences of success!
Despite everything, Lana is such an incredibly cheerful, sweet, beautiful, tough, strong, brave and wise girl. She undergoes all examinations, admissions, clinic appointments, etc. without reluctance. But she would really like the epilepsy to go away!
That’s why Sander and I will walk from our hometown of Warffum to Huizinge, where my parents live, on October 7, 2023 at 1:00 PM to raise even more money for research!
We as a family sincerely hope for your support.
Thank you in advance on behalf of Lana!
Love Sander and Laura
Would you like to support them or to give a heart under the belt? This can easily be done by making a (small) donation via this link: https://www.epilepsieloop.nl/fundraisers/laura-van-leeuwen. Highly recommended!
Facebook
Twitter
LinkedIn
2023-10-02 07:24:33
#Run #Lana #Bert #Koster
