Little Amaury suffered from an extremely rare disease.
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Amaury lost the battle with the corona virus on Sunday morning. The two-year-old boy suffered from an extremely rare disease, which made him extra vulnerable. After a corona infection, he was kept in an artificial coma. But to no avail.
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The boy suffered from CACNA1E, an extremely rare disease of which only 32 cases are known worldwide. It is a serious form of epilepsy for which there is no cure. In practice, the toddler could not stand or even hold his head up. The illness made the boy very vulnerable. According to his mother Marilyne, he contracted the infection through his grandfather, who came to them with cold symptoms and without a mouth mask.
Amaury then developed a high fever during the night of December 17 to December 18. When it didn’t drop, Maryline took her son to the MontLégia hospital in Liège. There, the boy had been kept in an artificial coma since Tuesday. He died there on Sunday morning, surrounded by his immediate family. His mother herself spread the news on her social media, according to the Sudpresse newspapers.
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