Welsh Women Face Agonizing Waits for Adenomyosis Care,Sparking Suicide Concerns
Cardiff,Wales – Thousands of women in Wales are enduring debilitating pain and lengthy waits for diagnosis and treatment of adenomyosis,a uterine condition ofen described as “endometriosis’s hidden sister,” prompting warnings of a mental health crisis and calls for increased investment in women’s healthcare. Some patients report the pain is so severe they require walking sticks.
The condition, where tissue similar to the lining of the uterus grows into the muscular wall of the uterus, can cause heavy, painful periods, chronic pelvic pain, and infertility. Advocates say the lack of timely care is driving some women to despair, with one individual stating, “You’re not going to allocate healthcare,” and adding, “We know it ruins lives. There’s high suicide within this bracket of people because they’ve got agonising, intractable symptoms, and yet are unable to get help.”
Adenomyosis impacts quality of life and can affect pregnancy outcomes, though research remains limited. The Royal college of Obstetricians and Gynaecologists (RCOG) reports that over 54,000 women in Wales are currently on waiting lists for gynaecological care, including those with adenomyosis.
“The relationship between adenomyosis and pregnancy outcomes is complex, and current research remains limited and inconclusive. More investment is needed in research to understand its potential impact on fertility,miscarriage,and premature birth,” a RCOG spokesperson said. “At the same time, urgent action is required to reduce gynaecology waiting lists… conditions that can have a severe impact on quality of life.”
The Welsh Government acknowledges adenomyosis as a priority area within its Women’s Health plan, allocating £3 million towards establishing Women’s Health Hubs in each health board by March 2026 and improving timely diagnosis and management. Though, the RCOG argues that women’s health continues to be “chronically underfunded” and is calling for prioritised investment in research, diagnostics, and treatments.
If you have been affected by the issues raised in this story, facts and support can be found via the BBC’s Action Line website.
