The Unexplained Decline

The ordeal began in 2021 when Lilien experienced a frightening episode of rapid heartbeat at school. Prior to this, she had been a healthy teenager, rarely even catching a cold. By 2023, weakness, shortness of breath, and extreme fatigue forced her to withdraw from physical education. Doctors initially suspected long-COVID, but standard treatments proved ineffective.

• 2021: Initial episode of violent heartbeat.
• 2022: Severe flu exacerbates symptoms.
• 2023: Unable to participate in physical education due to weakness and fatigue.
• Mid-2024: Confined to a wheelchair.

Despite physiotherapy,water treatments,and rest,Lilien’s condition continued to deteriorate. Her school made accommodations, providing adapted lessons and a relaxation room, but her muscle tone worsened, and her mobility declined.

Misdiagnosis and Despair

By early 2024, Lilien’s health reached a crisis point. She was hospitalized with fever and gait disturbances, but doctors were unable to find a cause. There was simply no cause, the MRI did not bring any results, her mother reported. By mid-2024, Lilien was confined to a wheelchair. the most disheartening aspect was the medical community’s shift toward attributing her suffering to mental illness.

Lilien recalls,I was so happy that my friends took care of me so much. However, the dismissal of her physical symptoms as psychological was incredibly frustrating.

A Breakthrough in Wolfhagen

Desperate for answers, Edith S. turned to Klaus runow of the Environmental Institute in Wolfhagen. Initially skeptical, Runow agreed to investigate after reviewing a video of lilien’s movements, which suggested a neurological disorder. He requested saliva and urine samples, which revealed notable food intolerances to gluten and milk, as well as impaired mitochondrial function.

The intestine was permeable and the mitochondria was broken, Runow explained. He noted that the food intolerances were triggering inflammation throughout Lilien’s body, further weakening her system.

The Road to Recovery

Following the environmental Institute’s findings, Lilien underwent a complete dietary overhaul, eliminating wheat and milk. She also received an intestinal renovation and nutritional supplements designed to support mitochondrial function. Within three months, her condition began to improve dramatically.

According to her mother, Lilien felt better within three months. She was able to leave the wheelchair, and gradually gait disorders regulated. Now Lilien is back in the Wolfhager Environmental Institute, overjoyed. She runs normal and wants with her mother Kassel explore.I don’t take part in physical education, reports the Viennese. But with constant muscle building, she is hopeful that this will soon be possible again and that she can lead a normal life again.

Expert Opinion on Mitochondrial Myopathy and Food Sensitivities

Dr. Gero Moog, a gastroenterologist from Kassel, notes that mitochondrial myopathy, a genetically triggered disease, can lead to severe muscle atrophy.Regarding food intolerances, he distinguishes between celiac disease and non-celiac gluten sensitivity (NCGS).

Celiacia is a clearly defined disease with a reaction to gluten, which results in a mucous membrane damage to the small intestine and thus causes a disturbance in nutrient absorption. The disease is quite common, the genetic predisposition is around 100 people.

dr. Gero Moog, Gastroenterologist

He adds that many people experience gluten sensitivity without having celiac disease. We call this syndrome NCGS (non celiac disease gluten sensitivity). Dr. Moog explains that hypersensitivity to wheat protein or substances added to the grain can play a role in NCGS.

Dr. Moog also notes the prevalence of food allergies, particularly to cow’s milk protein, nuts, peanuts, soy, shellfish, eggs, and wheat. He emphasizes that diagnosing these allergies can be challenging, and specialized tests like confocal laser endoscopy (Fast Food Allergy Sensitivity Test) offer the highest specificity and sensitivity.