Singer Santa Named Godmother of 2025 Telethon, Promising “All my Energy” to Rare Disease Research
PARIS, FRANCE – Pop artist Santa, best known as the former lead singer of the French rock group Hyphen Hyphen and hits like ”Salty Popcorn,” “Start Me Again,” and “The Difference,” will serve as the godmother of the 2025 Telethon, a major annual fundraising event for research into rare diseases. The proclamation signals a strategic effort to engage younger audiences with the vital cause.
Santa expressed her enthusiasm for the role, stating, “What is more beautiful than healing a child? The Telethon is this nose to life, that of changing predictions, transforming the incurable into progress, even healing. It is the hope that I would like to wear this year by becoming godmother of the Telethon. I will give all my energy.”
The Telethon, a cornerstone of French philanthropic efforts, relies on widespread public participation. This year’s event will unfold over a 30-hour television broadcast on the weekend of December 5th and 6th, complemented by a massive grassroots campaign. Organizers anticipate the involvement of 280,000 volunteers hosting approximately 22,000 events across 15,000 municipalities.
beyond the televised appeal, the Telethon is expanding its educational outreach. In Brittany, and potentially other regions, the “1000 Researchers in Schools” initiative will bring scientists from Telethon laboratories directly into middle schools from November 3rd to December 5th, fostering a deeper understanding of rare disease research among students.
Santa further emphasized the importance of the Telethon’s mission, adding, “The disease leaves a space – sometimes tiny – for laughter, tenderness, life… Each research, each donation is a step against the disease. Each gesture, an assertion that the future still belongs to children.”
The Telethon has a long history of driving significant advancements in the treatment of rare genetic diseases, and with Santa’s involvement, organizers hope to amplify their impact and reach a new generation of supporters.
