PCOS Diagnosis Sparks Frustration and Calls for Better Support

Patient’s Difficult Journey Highlights Gaps in Healthcare for Women

A woman’s experience with polycystic ovary syndrome (PCOS) reveals significant shortcomings in healthcare. Her frustration with the diagnostic process and the dearth of support underscores the need for enhanced understanding and assistance for those with this common hormonal disorder.

Early Tests and Delayed Diagnosis

Name and address supplied shared their difficulties with a PCOS diagnosis. Testing began in their teens, with initial results deemed normal. Years later, at age 34, they sought medical attention for weight gain and exhaustion. The diagnosis came with warnings about health risks, and advice to lose weight.

“The NHS needs to provide better understanding and support for people with PCOS. I hope it improves quickly. I would hate, if I have a daughter, for her to have the same experience I have had.”

—Name and address supplied

Many women report similar struggles. According to the World Health Organization, PCOS affects an estimated 8-13% of women of reproductive age globally (WHO 2024).

Maternity Concerns and Lack of Support

Despite the challenges, Name and address supplied became pregnant. They faced anxieties related to the elevated risks of miscarriage, gestational diabetes, and pre-eclampsia, which were largely dismissed by their midwife. Although an early diabetes test was negative, the lack of support added to their worries.

The patient emphasized the considerable time and effort required to understand a suitable diet and exercise plan. They highlighted the isolation experienced while navigating the condition.

The current healthcare approach isn’t adequately supporting women with PCOS. Addressing these issues and providing better care is essential to prevent future struggles for those affected.