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Young Woman’s Life Depends on Regular Blood Transfusions | 36 Units & Counting

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Psychologist’s MDS Diagnosis Highlights Importance of Blood Donation

Janine Westendorp, a psychologist who once aided cancer patients, found herself on the other side of the consulting room after experiencing extreme fatigue and pain.Her symptoms lead to a diagnosis of myelodysplastic syndrome (MDS),a rare bone marrow disease characterized by chronic anemia. Now,she relies on regular blood transfusions to maintain her energy levels and quality of life.

The Shock of a Rare Diagnosis

MDS is uncommon, especially at a young age, which has led to ongoing investigations into Janine’s specific condition. Despite consulting with numerous specialists, a definitive diagnosis remains elusive. This uncertainty weighs heavily on Janine, as MDS can potentially evolve into acute leukemia in approximately 30% of patients [1].

Did You Know? Myelodysplastic syndromes (MDS) are a group of diverse bone marrow disorders in which the bone marrow does not produce enough healthy blood cells [2].

The Lifeline of Blood Transfusions

Janine’s low hemoglobin levels, which impair oxygen transport throughout her body, substantially impact her daily life. She experiences constant fatigue, discomfort, and visible symptoms like blue lips and paleness. To combat these effects, she receives blood transfusions every two weeks.Each transfusion provides a temporary boost, allowing her to engage in activities with loved ones.

Before her diagnosis, Janine was not a blood donor. Now, she recognizes the profound impact donors have on recipients’ lives. She has received thirty-six bags of blood and counting. Her experience has inspired her family and friends to become regular blood donors.

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