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A Brazilian insurance coverage firm and Lusíadas non-public hospital in Portugal had the identical holding firm. Lusíadas reportedly promised the director assist for the household, however he guarantees that the possession of this well being group had no impact.

The Zolgensma therapy given to the Portuguese-Brazilian {couples} on the Santa Maria hospital saved thousands and thousands of euros for the Brazilian insurance coverage firm, which till then paid for the choice medication the kids took in Brazil and ‘ needed to be repeated each 4 months. .

This financial savings is the logical results of a courtroom determination that pressured the Brazilian insurer to pay for this different medication and was talked about by the kids’s mom within the recording captured within the October 2023 by CNN Portugal.

After months of accusing CNN Portugal of unlawful recording and taking her phrases in regards to the so-called “pistolão” out of context, final week, at Parliamentary Investigation Fee, Daniela Martins admitted that she actually wished to speak a couple of piece with household affect from the President of the Republic, Marcelo Rebelo de Sousa, however she would have been mendacity on the finish over there, in a model that she herself known as a “mistake” she made.

The lie, in keeping with the kids’s mom, was mentioned “out of secrecy” and since that’s what she heard for a very long time contained in the Santa Maria Hospital.

Insurer should pay for one more medication (in Brazil)

Along with the phrase “pistolão”, in that very same recording, at one other time already talked about in one other report from CNN in Portugal in December, Daniela Martins declared that she had made an settlement together with her Brazilian insurance coverage firm to pay her bills. would occur once they got here to Portugal.

Bear in mind, in September 2019 – earlier than the journey – the courtroom of São Paulo had confirmed that the aforementioned insurance coverage firm needed to pay ​​​​for the drug Spinraza to forestall the development of spinal wire atrophy and demise do- keep away from kids if they aren’t handled.

The truth that kids had been already taking this medication in Brazil helped medical doctors in Portugal resist scheduling appointments for youngsters, together with that the illness could be stabilize with Spinraza already, to be given each 4 months by spinal injection – the most important drawback of this drug.

Within the response of the insurer to a courtroom in Brazil, which CNN Portugal had entry to, it explains that “the imbalance that the sort of therapy brings to the well being plan is apparent. Within the case of a basic contract (…) it is going to improve the stratosphere the month-to-month quantity to be paid by the group of customers”.

“Contemplating the Case” [das gémeas]says the insurance coverage firm in the identical doc, “the fee is doubled, making it potential to specify the annual value of two.6 million reais”, that’s, about 600 thousand euros, taking into consideration the alternate price on the time.

Insurance coverage firm saves thousands and thousands

It’s on this context that the reason of Daniela Martins seems in her dialog with CNN Portugal, which marked an settlement with the medical insurance firm: “As I used to be going there and I used to be going to take away this ‘invoice’ from the shoulders, as a result of the drugs was [em Portugal] it was one dose… So I mentioned: they’ll save the 22 million that my daughters would spend right here… and I’m going there and Portugal goes to pay, so they’ll pay. pay me for the time I am there to get the drugs. So I went there [para Portugal] with the entire construction. On the airplane he needed to see a health care provider, a physiotherapist, a nurse. And once I arrived, a physiotherapist was staying with me at house” as a result of the kids had six physiotherapy classes a day, mentioned the kids’s mom.

The 22 million introduced by Daniela Martins will likely be, in precept, in Brazilian forex (reais) – nearly 5 million euros on the alternate price on the time.

A physiotherapist, nurse and “nanny” in her early days in Portugal, Daniela Martins reported on CNN Portugal that it was this place that made individuals at Santa Maria Hospital suppose she could be a “billionaire”.

Questioned within the Parliamentary Fee of Inquiry by the deputy chief Joana Mortágua, from the Left Bloc, in regards to the existence or not of an settlement with the insurance coverage firm that may have paid at the least a part of the prices​​​​ in Portugal, the kids’s mom, nonetheless, replied that no, this didn’t exist.

Now knowledgeable by CNN Portugal, the kid insurance coverage firm in Brazil additionally ensures that they haven’t made any settlement with the household to finance their return to Portugal, assuming, in observe , what Daniela Martins mentioned within the Senate of the Republic.

The help from the chief of Lusíadas

Joana Mortágua, deputy head of BE, additionally revealed, in the identical listening to, one other piece of knowledge that she herself thought-about unusual: an electronic mail response to Daniela Martins, from the non-public hospital Lusíadas, the place it may be learn “with the help of Dr. . Vitor Almeida, the director of Lusíadas, the scientific director of Lusíadas Lisboa, will likely be contacted in order that we will get the physician’s involvement by him. Teresa Moreno.”

The blocker was shocked at such a promise from the director of one of many largest non-public hospitals within the nation.

The physician specializing in spinal muscular atrophy was Teresa Moreno who months earlier had handled the infant Matilde with Zolgensma within the Nationwide Well being Service, the drugs costing 2 million euros for every youngster which was handled with a single dose.

The physician gave consultations in Lusíadas and Santa Maria and resisted scheduling the primary assembly of the twins on the public hospital till it was imposed by orders from the Division of State Well being, on the time led by Lacerda Gross sales.

The twins’ physician has already informed the Inspector Normal for Well being Actions (IGAS) that she didn’t even know in regards to the appointment on the non-public hospital the place she additionally labored.

An insurance coverage firm (in Brazil) and Lusíadas (in Portugal) had the identical proprietor.

One other curious reality identified by Joana Mortágua is that the e-mail indicating the potential of assist from Lusíadas was despatched to the mom of the kids by José Magro, a businessman with contacts in Portugal and Brazil, with none relationship with the well being division, besides the deputy. he mentioned he would have some relationship with Nuno Rebelo de Sousa.

Information consulted by CNN Portugal and confirmed by the Lusíadas group point out that the Lusíadas group and the Brazilian insurance coverage firm owned by the twins’ household on the time.

Lusíadas rejects, nonetheless, any affect from the proprietor that he had in frequent with the insurance coverage firm: “The insurance coverage organizations with which our shoppers or clients have a contractual relationship don’t intrude on the healthcare offered within the models of the Lusíadas Saúde Group. “

The appointment of the twins on the Lusíadas hospital in Lisbon was largely canceled similtaneously the appointment was registered instantly on the Santa Maria hospital that may permit them to be handled.

It isn’t recognized who canceled the submit at Lusíadas, however it’s sure that it was acquired at Santa Maria by order of the Division of Well being of the State, after communication with the son of the President of the Republic.

In accordance with IGAS, in the event that they had been seen within the non-public sector / Lusíadas, the kids must be despatched to the general public the place they might additionally obtain the Zolgensma that the household introduced throughout the Atlantic, towards the desires of the medical doctors. at Santa Maria Hospital.

For the medical doctors from the neuropediatrics service at this public hospital, who wrote a letter to the administration, it was important to have standards to assist households of Portuguese descent within the NHS, who didn’t pay taxes in Portugal, and who in search of the nation. to have entry to those that had been there On the time, it was the costliest medication on this planet, regardless of the opposite medication they’d of their nations of origin.