Stroke Survivor: Living with Acquired Brain Injury & Fatigue

by Dr. Michael Lee – Health Editor

Four years after a devastating fall during a sprint training session in Calpe, Spain, Amy Pieters continues her long journey of recovery, now residing in a care facility in Amersfoort, Netherlands. The incident, which occurred on December 23, 2021, resulted in a severe brain hemorrhage and required life-saving surgery that included the removal of a portion of her skull.

Pieters, then the reigning Dutch national road champion and a prominent figure in a renowned cycling family, spent three weeks in a hospital in Alicante before being transferred to the Netherlands. She emerged from a coma after approximately three months, initiating a prolonged and challenging rehabilitation process. Remarkably, she progressed from being wheelchair-bound to using a walker and eventually walking independently, even briefly returning to cycling in the summer of 2023.

Despite the impressive physical strides, the cognitive impact of the brain injury remains significant. Pieters experiences lasting non-congenital brain injury with limitations in short-term memory and severe aphasia. Her active vocabulary is limited to a few words, including “yes,” “no,” and “ouch.” She also suffers from epileptic seizures as a consequence of the surgery.

Since January 2024, Pieters has been living independently, with support, at InteraktContour in Amersfoort, a care location that provides a community for individuals with non-congenital brain injuries. Her partner, Stefan Vreugdenhil, visits her several days a week, having previously spent extended periods with her during the initial stages of rehabilitation. Vreugdenhil, who owns a bicycle shop, and the challenges of independent living for Pieters led to the decision to establish Amersfoort as her primary care location.

A recent moment of breakthrough during music therapy offered a poignant glimpse of Pieters’s progress. Even as participating in a therapy session, she spontaneously sang along to a portion of “Bloed, zweet en tranen” (Blood, Sweat & Tears) by André Hazes. Vreugdenhil described the experience as deeply moving, stating he hadn’t heard her voice in that way for several years.

While physical recovery has been notable, communication remains a substantial hurdle. Those around Pieters often rely on interpreting her responses through a limited vocabulary, making everyday interactions complex. Therapy in her care environment focuses not only on physical movement but also on strategies to enhance her daily functioning.

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