Lichen Sclerosus Causes Inflammation and Cancer Risk, say Experts
A lifelong inflammatory condition affecting the genitals can cause white patches, itching, soreness, and tearing. Lichen sclerosus impacts both men and women, though it is more common in women over the age of 50, according to Dr Nighat Arif, a GP specialising in women’s health.
- Lichen sclerosus is a lifelong inflammatory condition that causes white patches, itching, soreness, and tearing in genital areas.
- While it affects both men and women, it is more common in women over 50 and carries a small risk of vulval cancer.
- Diagnostic delays are common due to shame, embarrassment, and frequent misdiagnoses as sexually transmitted diseases.
Soreness Leads to Frequent Misdiagnoses
The condition causes soreness during sexual intercourse and urination, frequently leading to misdiagnoses as sexually transmitted diseases despite being non-contagious, as Dr Arif explained on the BBC Radio 5 Live podcast That Time of the Month. Patients frequently endure months or years of medical dismissals, incorrect labels, and delayed biopsies, detailing the experiences of individuals such as Monica Thomas and Clare Baumhaeur.
Diagnosis Delays Hide True Prevalence Rates
Research into the true prevalence of vulval lichen sclerosus remains limited. An analysis conducted by the University of Bristol focusing on populations in the West Midlands and Warwickshire estimated that the condition affects about 1% of women, though Dr Sophie Rees noted to the BBC that this figure is almost certainly an underestimate. Dr Rees pointed out that there is often a very long delay to diagnosis, with some people probably going their entire lives undiagnosed due to shame and a lack of awareness among both patients and healthcare professionals.
Risks of Untreated Symptoms
Beyond chronic physical discomfort, splitting, and tears, the condition carries a small risk of developing vulval cancer. This hidden and stigmatized disorder leaves patients isolated, urging affected individuals to document changes, seek multiple opinions, and push for proactive screening.
Disclaimer: The information provided in this article is for educational and scientific communication purposes only and does not constitute medical advice. Always consult with a qualified healthcare provider regarding any medical condition, diagnosis, or treatment plan.