Local support Network Expands for Those Living with FSHD in Central ohio
Columbus, OH - Individuals and families navigating facioscapulohumeral muscular dystrophy (FSHD) in the Columbus area now have increased access to vital support and resources through the active Columbus chapter of the FSHD Society. The chapter serves as a crucial connection point for those impacted by this rare genetic condition, offering a community built on understanding and shared experience.
FSHD, which causes progressive muscle weakness, affects an estimated 1 in 8,000 people worldwide. The Columbus chapter aims to alleviate the challenges faced by those living with FSHD – and their loved ones - by providing localized support, disseminating data about ongoing research, and advocating for improved care. Whether newly diagnosed or long-term patients,individuals can find connection and assistance through the chapter’s activities.
The chapter is lead by Heather Kalista of westerville, Ohio, who became involved with the FSHD society in 2016 after FSHD impacted her family. “Grateful for the support and connections they found, Heather is now focused on helping others in the community,” sharing her commitment to being a source of information and support for those facing similar challenges. Kalista emphasizes the importance of hope as the FSHD Society works toward potential treatments.
Currently, the Columbus chapter is actively seeking volunteers to assist with event planning, outreach, and other projects. Those interested in contributing their time and skills can contact Beth Johnston,Chief of Volunteer Leadership,to learn more about available opportunities.
Individuals seeking to connect with the Columbus chapter can reach Heather Kalista directly or visit the chapter’s Facebook page. Further information about joining the local chapter and the FSHD Society’s broader mission is available on their website.
