Navigating Support: Guidance for Families Facing Childhood Cancer
WASHINGTON, D.C. – As childhood cancer diagnoses continue to impact families nationwide, experts are offering critical guidance on how to provide meaningful support to parents navigating this challenging journey.While the instinct to help is strong, knowing what to say – and what to avoid – can make a significant difference, according to advice from Kim and dr.Mulrooney.
It’s perfectly acceptable to acknowledge feeling lost for words, even with long-standing relationships. Expressions of genuine concern and compassion are always welcome. Recommended phrases include: “this must be a tough time for you,” “I’m holding you all in my thoughts,” “I’m sorry to hear that you’re going through this,” “How are you doing today?” and “I’m not quite sure what to say, but I wont to help.”
However, certain statements can be unhelpful. Avoid saying “I know what you’re going through” unless you have personal experience with a child’s cancer diagnosis. Steer clear of clichés like “Everything happens for a reason” or “Stay positive.” caution is advised when using “battle” language, as its interpretation varies. Religious messages should be avoided unless the family’s beliefs are known. Phrases like “You’re so brave” or “It’s going to be OK” can also be detrimental,potentially implying a need for constant strength or offering false assurances.
It’s crucial to remember that the child’s care plan remains confidential between the family and their healthcare team. Unsolicited advice, including sharing other cancer stories or suggesting unproven therapies, should be avoided unless specifically requested and you possess relevant expertise.
If a misstep occurs, honesty is the best approach, dr. Mulrooney recommends.
Support often peaks immediately following a diagnosis, but childhood cancer treatment can extend for months or even years, encompassing numerous appointments and tests.Consistent check-ins are vital, even after treatment concludes. “The most significant thing is not to pull back,” Dr.Mulrooney said. “Families feel it if you disappear from their life. There may be nothing you can truly do. But your notes, emails, texts, and calls let the parents know you’re still there for them.”
Further resources for supporting caregivers are available through the American Cancer Society.
Dr. Mulrooney is a member of ASCO’s Patient Data Editorial Board.
