SIOUX FALLS, S.D. (Dakota News Now) – A golf tournament held saturday at Elmwood Golf Course in Sioux Falls drew over 100 participants and raised funds for research into CTNNB1 Syndrome, a rare genetic disorder affecting the Garretson family’s son, Carter Dreckman.
The “Caring for Carter Golf Tournament” saw 30 teams compete while boosting awareness and financial support for finding treatments for the condition. CTNNB1 Syndrome is exceptionally rare, with approximately 500 confirmed cases worldwide.
“It means the world.we can’t thank these guys enough.We’ve got all of these people that are going too raise some good money, hopefully find a cure for Carter. That’s the ultimate goal, and that sounds like a promising future. So, hopefully we can accomplish that,” said Carter’s father, Luke Dreckman.The Dreckmans shared that clinical trials for molecule development are anticipated to begin within the next twelve months, signaling potential advancements toward a cure.
For more on the Garretson family’s journey and CTNNB1 Syndrome,see previous coverage: Garretson family raises awareness for rare genetic disorder, CTNNB1 Syndrome.
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