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Brasserie Le d’Artagnan‘s Solidarity Day Supports “Léandro, Our Superhero“
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Alès, France – Brasserie Le d’Artagnan, located in the Les Germans merchant gallery, hosted a special day of solidarity on Friday, June 20th, to benefit the association “Léandro, Our Superhero,” which supports a young boy battling a rare genetic disease. The event,in partnership with the Saint-Maurice cooperative cellar,showcased the community’s commitment to aiding Léandro and his family.
A Community Rallies for Léandro
Léandro, a year and a half old, faces meaningful developmental challenges due to migrant partial epilepsy, an ultra-rare condition linked to the KCNT1 gene. This condition, affecting only about 20 children in France, causes him to experience between 50 and 100 crises each day [[1]]. His parents, Laura and Matthieu, have dedicated their lives to providing him with constant care and support.
Pro Tip: Support groups and online forums can provide invaluable emotional support and practical advice for families facing similar challenges.
Touched by Léandro’s story, Soraya Messeleka, the manager of Brasserie Le d’Artagnan, promptly offered her support. The result was a special day featuring the sale of solidarity wine, in collaboration with the Saint-Maurice cellar, drawing a large crowd of supportive customers.
Many customers came to consume wine from the Saint-Maurice cellar, since at each bottle, € 1 was donated to the association. • Romain Fiore
The Role of the Saint-Maurice Cellar
Flavie Castanier,in charge of marketing and communication from the Saint-Maurice cellar,explained that as a cooperative cellar,they recognize their role on a societal and territorial level. For every bottle of wine from the Poujols range purchased, €1 is donated to the association, both at the brasserie and in the three Vilavigne boutiques (Maruéjols-lès-Gardons, Brouzet-lès-Alès, Montpeyroux). This operation continues throughout June.
did You know? Cooperative cellars frequently enough engage in community support initiatives as part of their commitment to local development.
“Léandro,Our Superhero”: Providing Essential Support
The association,created in September 2024,aims to finance essential equipment for Léandro that is not covered by Social Security,such as a medical stroller and a specialized car seat. Ultimately,an adapted vehicle will also be necessary. Every euro collected helps improve Léandro’s quality of life and provides respite for his parents.
The operation took place at the Brasserie le d’Artagnan of the Les German merchant gallery in Alès,and it continues all the month of June. • Romain Fiore
Further Acts of Solidarity
In addition to the wine sales, Soraya and her team are planning to offer a romantic weekend to Léandro’s parents, allowing them to reconnect while Léandro is cared for by his grandparents. The brasserie also offers a “Burger Léandro,” with €1 from each sale donated to the association.
From September,further fundraising activities are planned,including lotteries,raffles,and other events,with the support of city council member Léa Boyer.
Laura and her companion Matthieu set up an association “Léandro our superhero” to help their son Léandro suffers from rare epilepsy. • Romain Fiore
Key Facts: Support for Léandro
| Initiative | Details | Impact |
|---|---|---|
| Solidarity Wine Sales | €1 donation per bottle of Poujols range wine | Funds essential equipment for Léandro |
| “Burger Léandro” | €1 donation per burger sold | Supports Léandro’s care and well-being |
| Future Events | Lotteries, raffles, united events | Raises additional funds for the association |
Understanding Rare Genetic Diseases
Rare genetic diseases, like the one Léandro suffers from, pose unique challenges for patients and their families. These conditions often require specialized care, extensive research, and significant financial resources. Organizations like the National Organization for Rare Disorders (NORD) play a crucial role in advocating for patients, funding research, and providing support to families affected by rare diseases.
The financial burden of managing a rare disease can be considerable, with costs associated with specialized medical care, therapies, and assistive devices. Community support
