Hull Couple Launch Fundraising Mission for Son’s Rare Mitochondrial Disease
HULL, England – A Hull couple is spearheading a fundraising campaign too support their young son’s battle with a rare and debilitating mitochondrial disease. Ezra Fletcher, age four, was diagnosed with mitochondrial dysfunction, a condition affecting the energy-producing parts of cells, leaving him with a range of complex health challenges. His parents, Laura Mattinson and an unnamed father, are steadfast to raise awareness and funds for vital research and potential treatments.
mitochondrial diseases are estimated to affect around 1 in 5,000 people worldwide, and can manifest in a multitude of ways, impacting nearly every system in the body. While there is currently no cure, increased research offers hope for improved treatments and a better quality of life for those affected. Ezra’s condition means he requires constant care and faces an uncertain future, prompting his family to launch “Ezra’s Mission” to support research and connect with others facing similar struggles.
“We would love to get some people together and do some charity fundraising days.It will be great if others can support ezra’s Mission too,” said Mattinson. The family is seeking support from the local community and beyond to help fund research into mitochondrial dysfunction, which medical experts believe could have implications for treating a wide range of illnesses.
Prof. Volkmar Weissig, president of the World Mitochondrial Society, emphasizes the broad impact of mitochondrial malfunction, stating, “It is now widely accepted there hardly exists any human disease which does not involve mitochondrial malfunction in some way.” The condition is now recognized as a factor in diseases such as autism, cancer, obesity, dementia, diabetes, epilepsy, heart disease, and Parkinson’s, among others.
Those wishing to support Ezra and his family can find more information and donate at https://www.mymitomission.uk/ezras-mito-mission-hull/.
