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Suffering from Vici syndrome

Rupert Moore was born with the extremely rare Vici syndrome, reports the English local newspaper Kent Online.

Last week he was rushed from his home in Broomfield to Margates Queen Elizabeth The Queen Mother Hospital, after having detected the virus.

The little boy was placed in the intensive care unit last Wednesday. The doctors’ prognosis was not good, and the family was prepared for the worst, according to Kent Online.

His family still hopes that the five-year-old will survive, and he is still fighting the virus, a week after the gloomy prognosis.

The doctors’ gloomy prediction

“Last week we were asked if we wanted to make it” comfortable “for Rupert, or put him in the intensive care unit,” Rupert’s mother, Camilla Crick, told Kent Online.

She chose to put her son in the intensive care unit and he was transferred to Evelina Children’s Hospital in London. There they are said to have been told that he most likely only had one day left to live.

But the latest forecasts have shown some improvement in Rupert, who turned five last Friday.

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– He’s not ready

The mother says that the son’s condition is stable and that he has improved somewhat.

– He shows us that he is trying to fight, no matter what is going on in his body. I think he will survive, you can see that he does not give up. He’s not ready.

Throughout his short life, Rupert has defied the odds. Experts are said to have told his mother that he would die before his fourth birthday, due to Vici syndrome.

Only about 100 cases of the incurable condition have been documented around the world, with patients usually dying as infants, according to the newspaper.

– I have a lot of medical equipment at home to help him. He has a backrest, rails for his legs and a hip completely out of joint. He can not walk or crawl, Crick said.

Blind

Rupert is registered blind, unable to speak, eat, move or keep his head up without help – but Crick says this is the first time her son has been admitted to the intensive care unit.

She has launched one fundraising campaign to generate 2,000 pounds, about 24,000 Norwegian kroner, to help her travel to London to be by her son’s bed.

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