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Esther’s experience with Idiopathic Hypersomnia (IH) highlights a reality where many suffer in silence, finding it difficult to explain their condition to others. She shares her journey, noting the common misunderstanding that IH is simply about sleeping too much.
Many people believe that IH means poor sleep quality and that more rest is the answer. However, Esther clarifies that her sleep quality is good; the primary challenge is the overwhelming difficulty in waking up and staying alert.
Beyond the Misconception of ‘More Sleep’
Esther finds it challenging to discuss her condition openly, fearing she will receive unhelpful advice to simply rest more. She prefers to remain active and works full-time, not wanting to engage in discussions that misinterpret her needs.
She hopes for increased awareness and the development of better strategies to help manage the physical aspects of IH. Finding ways to position the body correctly is one area where more support would be beneficial.
Understanding Idiopathic Hypersomnia
Idiopathic Hypersomnia (IH) is a chronic neurological sleep disorder characterized by excessive daytime sleepiness
