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Man, 24, Experiences First Real Food After Years of Dietary Restrictions
After nearly a lifetime of dietary restrictions, 24-year-old Ben Sutter is finally experiencing the joy of eating real food. Diagnosed with eosinophilic gastroenteritis (EGE) at 15 months old, a rare condition where the body attacks food, Sutter relied on a special formula and a very limited selection of safe foods. Now, thanks to the medication Dupixent, he’s exploring a world of flavors and documenting his culinary adventures on TikTok.
The Long Road to real Food
For most of his life, Sutter’s diet consisted primarily of Neocate Splash, a nutrient-rich formula packaged in juice boxes. By age 20, he could only tolerate potatoes, rice, and corn, and even those required specific preparation. Testing new foods involved undergoing upper endoscopies, an invasive procedure that made eating feel like a medical trial.
Did You No? eosinophilic gastroenteritis (EGE) is a rare condition, affecting an estimated 1 to 6 per 100,000 individuals, characterized by inflammation in the digestive system. The American Partnership for Eosinophilic Disorders (APFED) provides resources and support for individuals and families affected by EGIDs.
A Turning point with Dupixent
In 2021,Sutter’s life changed when he was approved for Dupixent,a medication designed to reduce inflammation.Just one month after starting the treatment, his endoscopy results came back clear for the first time in almost 16 years, opening the door to a world of new culinary possibilities.
discovering the World of Food
Now, Sutter is enthusiastically embracing the opportunity to eat almost anything. He is sharing his experiences on TikTok, capturing his first encounters with various foods and the joy of participating in food-centered social events.
Pro Tip: When introducing new foods after a period of restriction, it’s best to start slowly and monitor for any adverse reactions.Consulting with a registered dietitian or allergist can help create a safe and balanced eating plan.
The Social Impact of Food Restrictions
Sutter notes that his dietary restrictions made him realize how much of society revolves around food. Birthday parties,holidays,and other social gatherings frequently enough centre around meals,and his inability to participate fully made him feel excluded.
From ages 3 to 16, Sutter relied on a feeding tube daily, carrying a pump and formula boxes to ensure he received adequate nutrition. Homeschooling provided flexibility in managing his condition,while attending a weekly co-op allowed him to connect with others.
While his restrictions didn’t initially bother him, around age 12, Sutter began to yearn for normalcy. His parents, however, emphasized that dinner was about family time, not just the food on the table.
family Support and Creative Solutions
Sutter’s family played a crucial role in helping him navigate his dietary challenges. His mother went to great lengths to include him in holidays and other food-related events. For one birthday, his parents arranged for a cotton candy machine, as plain sugar was one of the few things he could safely eat. His mother even molded the cotton candy into a cake shape.
His parents consistently encouraged him to focus on what he could do rather than what he couldn’t, helping him maintain a positive outlook despite his limitations.
| Year | Event |
|---|---|
| 2000 (approx.) | diagnosed with eosinophilic gastroenteritis (EGE) |
| 2003-2016 | Relied on feeding tube for daily nutrition |
| 2021 | Approved for and began taking Dupixent |
| 2021 (Post-Dupixent) | First clear endoscopy in 16 years, began eating new foods |
In high school, Sutter transitioned to drinking formula from juice boxes full-time, carrying them in a bag as his primary source of nutrition. He found that college students were generally understanding of his condition.
What are some of your favorite foods that you enjoy sharing with others? How can communities better support individuals with dietary restrictions?
Understanding Eosinophilic Gastroenteritis (EGE)
Eosinophilic gastroenteritis (EGE) is a rare inflammatory disorder characterized by an elevated number of eosinophils (a type of white blood cell) in the gastrointestinal tract. This inflammation can affect various parts of the digestive system, leading to a range of symptoms, including abdominal pain, nausea, vomiting, diarrhea, and difficulty absorbing nutrients. The exact cause of EGE is not fully understood, but it is believed to involve a combination of genetic and environmental factors. Diagnosis typically involves endoscopy with biopsy to examine the gastrointestinal tissues for eosinophil infiltration.Treatment options may include dietary modifications, medications to reduce inflammation, and, in certain specific cases, elimination diets to identify and avoid trigger foods.
Frequently Asked Questions About Food Allergies and Intolerances
- What is the difference between a food allergy and a food intolerance?
- A food allergy involves an immune system response, which can be life-threatening. A food intolerance, on the other hand, does not involve the immune system and typically causes less severe symptoms, such as digestive discomfort.
- What are the most common food allergens?
- The most common food allergens include milk, eggs, peanuts, tree nuts, soy, wheat, fish, and shellfish. These foods account for the majority of allergic reactions.
- How are food allergies diagnosed?
- Food allergies are typically diagnosed through a combination of medical history, physical examination, skin prick tests, and blood tests. In certain specific cases, an oral food challenge might potentially be performed under medical supervision.
- What is the treatment for food allergies?
- The primary treatment for food allergies is strict avoidance of the allergenic food. Individuals with food allergies should also carry an epinephrine auto-injector (EpiPen) in case of accidental exposure.
- Can food allergies develop at any age?
- Yes,food allergies can develop at any age,even though they are more common in children. Some children may outgrow certain food allergies, while others may develop new allergies later in life.
Disclaimer: This article provides facts for general knowledge and informational purposes only, and does not constitute medical advice. It is essential to consult with a qualified healthcare professional for any health concerns or before making any decisions related to your health or treatment.
Share Ben’s inspiring story and join the conversation! What new food would you recommend he try next?
