Living with a rare autoimmune disease

Hattersheim (ots) – CIDP, the chronic inflammatory demyelinating polyneuropathy, is a rare autoimmune disease in which the insulating layer of the nerve fibers is attacked, inflamed and gradually broken down. The result: a disturbance in the signal transmission in the nerves. This leads to impairments in movement and sensory perception. It is caused by the patient’s own immune system, which can no longer reliably differentiate between “own” and “foreign” in the case of an autoimmune disease and which also wrongly destroys the body’s own cells.

A disease with many faces

CIDP is a complex disease. The symptoms can vary significantly. They develop either slowly and over a longer period of time or in batches of different intensities. Therefore, CIDP is often diagnosed late or not correctly at all.

A distinction is made between motor and sensory symptoms, depending on whether motor (responsible for movement) or sensory (responsible for perception) nerve fibers are affected.

The motor symptoms include reduced strength and mobility, or gait insecurity. The CIDP often shows in the beginning in a bilateral weakness in the legs or arms. What starts with a slight muscle weakness can lead to symptoms of paralysis. Sensory symptoms appear e.g. in the form of sensory disturbances on the hands and feet or changed perception of touch.

Early diagnosis is crucial

If polyneuropathy is suspected, the patient should be referred to a neurologist for an early diagnosis. In the course of further investigations, e.g. B. other neurological autoimmune diseases such as Guillain-Barré syndrome (acute form of CIDP) excluded. Diabetes and alcohol abuse can also lead to chronic polyneuropathy and are therefore often wrongly assumed to be the cause. Appropriate treatment can be initiated once a CIDP has been diagnosed.

My life with CIDP

In their very personal stories on the service portal www.leben-mit-cidp.de (http://www.leben-mit-cidp.de?utm_source) they tell how patients deal with their illness and lead a self-determined life despite CIDP = Focus & utm_medium = nativeads & utm_campaign = awarness). Here, patients, relatives and other interested parties can find further useful information on illness, diagnosis, treatment options and other services.

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