Photos Spotlight Disease Impact on Women

Photographic Exhibit Raises Awareness of Overlooked Illness

A new photo exhibit aims to illuminate female genital schistosomiasis (FGS), a neglected tropical disease. The project, titled Bold water, features portraits of women affected by the illness, bringing attention to its impact on their lives and the stigma they face.

The Exhibit’s Focus

The exhibition, currently at the Photoville Festival in Brooklyn, New York, presents the work of photographer Miora Rajaonary. She sought to bring awareness to FGS. According to the World Health Organization, this waterborne parasitic infection affects millions of women and girls, mainly in Africa.

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“Someone who is not afraid to dive into the water, even if there is a strong current.”

—Miora Rajaonary, Photographer

FGS can cause severe health issues. A 2023 study published in The Lancet showed that around 56 million women and girls globally are affected by FGS, which can lead to infertility and other complications (Source: The Lancet).

The Stories Behind the Images

The photographer captured images of women like Sylvia Razanaparana, who contracted FGS while working in rice fields. Her husband accused her of infidelity due to the disease’s symptoms and left her.

The project’s title, a Malagasy phrase, reflects the bravery of these women. They often work in the very waters that led to their infections. Rajaonary photographed the women in front of a blue backdrop. The white dots symbolize the parasites that spread the infection.

The portraits, which include women wearing traditional Malagasy face masks, aim to destigmatize the disease. By sharing their experiences, these women demonstrate their courage and resilience. They hope to encourage greater awareness and support for those affected by FGS.